CANADIAN iRARE CENTRES in partnership with the Regroupement québécois des maladies orphelines (RQMO)
Are you, your child, or a loved one affected by a rare disease? We will find the best information and resources for you.
DO YOU NEED INFORMATION ON YOUR RARE DISEASE?
WE WILL FIND FOR YOU :
- Up-to-date medical information
- Clinics or expert doctors
- Existing treatments or treatments in development
- Research and clinical trials
- Information on genetics, heredity and genetic testing
DO YOU NEED HELP, SUPPORT, RESOURCES?
WE WILL CONNECT YOU TO:
- Government services
- Community resources
- Patient organizations
- People with the same disease as you in Canada (matching service)
OUR MATCHING SERVICE
- If you want to get in touch with an individual or family in Canada who deals with the same rare disease (or similar disease)
It is difficult to find people with a specific rare disease across Canada when there is no patient organization. The more people join our contact registry, the more people we can help. Our contact registry can also be used to inform you about:
- Research projects
- Clinical trials
- New treatments for your rare disease.
We respect confidentiality of your personal information.
TREATMENTS
Find out more about existing treatments or those in development.
Participate in the evaluation of a new drug.
COMMUNITY
Find a community to support you and that understands your disease journey.
Connect with someone with the same or similar disease.
Find out what is happening in Canada and internationally for rare diseases.
RESOURCES
Consult our directories to find resources across Canada and in your province:
- Medical resources
- Support for people with disabilities
- Support for caregivers
- Financial aid
- Education, employment, etc.