{"id":4617,"date":"2024-10-28T23:06:00","date_gmt":"2024-10-28T23:06:00","guid":{"rendered":"https:\/\/irarecentres.org\/recherche\/"},"modified":"2025-02-20T02:52:45","modified_gmt":"2025-02-20T02:52:45","slug":"recherche","status":"publish","type":"page","link":"https:\/\/irarecentres.org\/fr\/recherche\/","title":{"rendered":"Recherche"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"4617\" class=\"elementor elementor-4617 elementor-4022\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e28eb55 e-flex e-con-boxed e-con e-parent\" data-id=\"e28eb55\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-cec718f elementor-widget elementor-widget-spacer\" data-id=\"cec718f\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-273fecb elementor-widget elementor-widget-heading\" data-id=\"273fecb\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Recherche sur les maladies rares<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1b0f051 elementor-widget elementor-widget-spacer\" data-id=\"1b0f051\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7d5fbb6 e-flex e-con-boxed e-con e-parent\" data-id=\"7d5fbb6\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-217b86a e-con-full e-flex e-con e-child\" data-id=\"217b86a\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f724926 elementor-widget elementor-widget-image\" data-id=\"f724926\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"940\" height=\"788\" src=\"https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/10\/Recherche-.png\" class=\"attachment-full size-full wp-image-4026\" alt=\"\" srcset=\"https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/10\/Recherche-.png 940w, https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/10\/Recherche--300x251.png 300w, https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/10\/Recherche--768x644.png 768w\" sizes=\"(max-width: 940px) 100vw, 940px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7b4f471 e-con-full e-flex e-con e-child\" data-id=\"7b4f471\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ea81231 elementor-widget elementor-widget-heading\" data-id=\"ea81231\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Ce que nous faisons pour la recherche<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b41107f elementor-widget elementor-widget-text-editor\" data-id=\"b41107f\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La recherche sur les maladies rares est essentielle pour am\u00e9liorer la qualit\u00e9 de vie des personnes touch\u00e9es et de leurs familles. Les chercheurs et gouvernements canadiens, ainsi que les compagnies pharmaceutiques, s&rsquo;int\u00e9ressent de plus en plus \u00e0 l&rsquo;avancement des connaissances sur les maladies rares et \u00e0 la mise au point de traitements. Notez que pour certaines maladies rares, la recherche est parfois effectu\u00e9e dans d&rsquo;autres pays ou dans le cadre d&rsquo;une collaboration internationale.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3727e29 e-flex e-con-boxed e-con e-parent\" data-id=\"3727e29\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7abf234 elementor-widget elementor-widget-text-editor\" data-id=\"7abf234\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Ce que nous faisons :<\/p><ul><li>Informer les personnes atteintes d&rsquo;une maladie rare, les parents d&rsquo;enfants atteints ou d&rsquo;autres proches aidants sur\u00a0 la recherche qui est men\u00e9e sur leur maladie rare.<\/li><li>Informer les patients\/proches aidants des possibilit\u00e9s de participer \u00e0 des projets de recherche et \u00e0 des essais cliniques.<\/li><li>Informez les patients\/proches aidants sur les enqu\u00eates ou les registres de patients men\u00e9s par les associations de patients.<\/li><li>Aider les chercheurs \u00e0 recruter des participants pour leurs projets de recherche et leurs essais cliniques.<\/li><li>Informer les professionnels de la sant\u00e9 sur les projets de recherche et les essais cliniques en cours.<\/li><li>Contactez des chercheurs pour les associations ou les patients\/proches aidants qui souhaitent faire avancer la recherche sur leur maladie.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-cb71c14 e-con-full e-flex e-con e-child\" data-id=\"cb71c14\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-fe04a7e elementor-widget elementor-widget-heading\" data-id=\"fe04a7e\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Vous voulez tout savoir sur la recherche concernant votre maladie rare ? <\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e658940 elementor-widget elementor-widget-text-editor\" data-id=\"e658940\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Contactez nous.<\/strong> Nous effectuerons des recherches \u00e0 travers diverses sources d&rsquo;information et partagerons avec vous les projets des chercheurs au Canada et \u00e0 l&rsquo;\u00e9tranger. Nous pouvons \u00e9galement r\u00e9pondre \u00e0 vos questions pour vous aider \u00e0 mieux comprendre les projets de recherche et les essais cliniques. <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-35d523e elementor-widget elementor-widget-spacer\" data-id=\"35d523e\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9aafcc3 elementor-widget elementor-widget-heading\" data-id=\"9aafcc3\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Participez d\u00e8s aujourd'hui \u00e0 la recherche sur votre maladie rare<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-88f15fb elementor-widget elementor-widget-text-editor\" data-id=\"88f15fb\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Inscrivez-vous, votre enfant ou un proche dans un REGISTRE<\/strong><\/p><p><strong>Un registre de maladies ou de patients<\/strong> est un ensemble de donn\u00e9es sur les patients ayant re\u00e7u un diagnostic pr\u00e9cis. Ces donn\u00e9es peuvent comprendre les sympt\u00f4mes, les ant\u00e9c\u00e9dents m\u00e9dicaux, les m\u00e9dicaments, les informations g\u00e9n\u00e9tiques, etc. Dans le cas de certains registres, ce sont les m\u00e9decins qui recrutent les patients pour y participer. D\u2019autres sont g\u00e9r\u00e9s par des associations de patients. Vous pouvez alors vous y inscrire vous-m\u00eame ou inscrire votre enfant. C\u2019est une fa\u00e7on pour vous de contribuer \u00e0 la recherche. Les donn\u00e9es aident \u00e0 mieux comprendre la maladie et \u00e0 concevoir des projets de recherche et des essais cliniques pour d\u00e9velopper de nouvelles th\u00e9rapies.<\/p><p>Il existe des registres pour des maladies rares sp\u00e9cifiques, pour toutes les maladies rares (un registre auquel vous pouvez vous inscrire quelle que soit votre maladie), et m\u00eame pour les maladies rares non diagnostiqu\u00e9es.<\/p><p>Voir ci-dessous le \u00ab Registre de registres \u00bb pour les maladies rares mis sur pied par le Regroupement qu\u00e9b\u00e9cois des maladies orphelines (RQMO). Il s\u2019agit de registres dans lesquels les patients ou les proches aidants peuvent s\u2019inscrire ou demander \u00e0 \u00eatre inscrits.<\/p><p>Si vous avez besoin d\u2019information ou d\u2019aide par rapport \u00e0 ces registres ou si vous n\u2019en trouvez pas pour votre condition, <strong>contactez-nous<\/strong>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c911880 e-flex e-con-boxed e-con e-parent\" data-id=\"c911880\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-61f25e9 e-con-full e-flex e-con e-child\" data-id=\"61f25e9\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e3ed044 elementor-align-left elementor-widget elementor-widget-button\" data-id=\"e3ed044\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/drive.google.com\/file\/d\/1htVQ-aqVE9ap60mHKXRmI7U2UOQurD-l\/view\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">CONSULTEZ LE REGISTRE DES REGISTRES<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-35b0293 e-con-full e-flex e-con e-child\" data-id=\"35b0293\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ae2f8bf elementor-widget elementor-widget-heading\" data-id=\"ae2f8bf\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">INSCRIVEZ-VOUS \u00c0 LA RECHERCHE !<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b3a7de4 elementor-widget elementor-widget-image\" data-id=\"b3a7de4\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"324\" height=\"220\" src=\"https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/10\/Capture-decran-2024-10-28-192249.png\" class=\"attachment-large size-large wp-image-4524\" alt=\"\" srcset=\"https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/10\/Capture-decran-2024-10-28-192249.png 324w, https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/10\/Capture-decran-2024-10-28-192249-300x204.png 300w\" sizes=\"(max-width: 324px) 100vw, 324px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-da15422 e-flex e-con-boxed e-con e-parent\" data-id=\"da15422\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2f4f135 elementor-widget elementor-widget-spacer\" data-id=\"2f4f135\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-101f104 elementor-widget elementor-widget-text-editor\" data-id=\"101f104\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Registres canadiens:<\/strong> En 2024, l\u2019Agence canadienne des m\u00e9dicaments a dress\u00e9 l\u2019inventaire des registres de maladies rares qui sont canadiens ou internationaux qui incluent des patients canadiens. Ces registres sont g\u00e9r\u00e9s soit par des \u00e9tablissements de soins de sant\u00e9 ou de recherche, soit par des organisations de patients.<\/p><ul><li><a href=\"https:\/\/www.cda-amc.ca\/sites\/default\/files\/pdf\/CP0033-Rare-Disease-Registries.pdf\">Registres canadiens des maladies rares<\/a><\/li><li><a href=\"https:\/\/www.cda-amc.ca\/sites\/default\/files\/pdf\/CP0033-Rare-Disease-Registries.pdf\">Registres internationaux de maladies rares incluant des patients vivant au Canada<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5a6b5a3 elementor-widget elementor-widget-heading\" data-id=\"5a6b5a3\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Organisations canadiennes d\u00e9di\u00e9es \u00e0 la recherche sur les maladies rares<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-df91363 elementor-widget elementor-widget-text-editor\" data-id=\"df91363\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/canadianrdn.ca\/\" target=\"_blank\" rel=\"noopener\">R\u00e9seau canadien des maladies rares<\/a><\/li><li><p><a href=\"https:\/\/cihr-irsc.gc.ca\/f\/53509.html\" target=\"_blank\" rel=\"noopener\">Initiative des IRSC pour la recherche sur les maladies rares<\/a><\/p><\/li><li><a href=\"https:\/\/www.rarekidscan.com\/fr\" target=\"_blank\" rel=\"noopener\"><span class=\"sqsrte-text-color--lightAccent\">RareKids-CAN<\/span><\/a><\/li><li><a href=\"https:\/\/rare.quebec\/fr\/\" target=\"_blank\" rel=\"noopener\">RARE.Qc<\/a><\/li><li><a href=\"https:\/\/www.care4rare.ca\/\" target=\"_blank\" rel=\"noopener\">Care4Rare<\/a><\/li><li><a href=\"https:\/\/www.bcchr.ca\/silent-genomes-project\" target=\"_blank\" rel=\"noopener\">Silent Genomes Project<\/a> (genomics for Indigenous populations)<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b81fb74 elementor-widget elementor-widget-heading\" data-id=\"b81fb74\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">D\u00e9couvrez les essais cliniques en cours<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e9ced76 elementor-widget elementor-widget-text-editor\" data-id=\"e9ced76\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li>Essais cliniques dans le monde (incluant le Canada) : <a href=\"https:\/\/clinicaltrials.gov\/\" target=\"_blank\" rel=\"noopener\">ClinicalTrials.gov<\/a><\/li><li>Inscrivez-vous \u00e0 un essai clinique au Canada : <a href=\"https:\/\/www.viperclinicaltrials.com\/\">VIPeR<\/a><\/li><li><a href=\"https:\/\/www.orpha.net\/fr\/research-trials\/research-projects\">Orphanet : projets de recherche et essais cliniques<\/a><\/li><li><a href=\"https:\/\/health-products.canada.ca\/ctdb-bdec\/?lang=fre\">Recherche d&rsquo;essais cliniques au Canada<\/a><\/li><li><a href=\"https:\/\/recherchecliniquequebec.com\/registre-essais-cliniques\/\">Registre public des essais cliniques<\/a> &#8211; Recherche clinique Qu\u00e9bec (vous pouvez vous inscrire)<\/li><li><a href=\"https:\/\/euclinicaltrials.eu\/\">Essais cliniques dans l&rsquo;Union europ\u00e9enne &#8211; EMA (euclinicaltrials.eu)<\/a><\/li><li><a href=\"https:\/\/trialsearch.who.int\/\">International Clinical Trials Registry Platform<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0509639 elementor-widget elementor-widget-heading\" data-id=\"0509639\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">En savoir plus sur l'engagement des patients dans la recherche<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2245a67 elementor-widget elementor-widget-text-editor\" data-id=\"2245a67\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Vous pouvez participer \u00e0 la recherche en tant que partenaire et non seulement comme sujet de recherche.<\/p><ul><li><a href=\"https:\/\/www.cihr-irsc.gc.ca\/f\/41204.html\" target=\"_blank\" rel=\"noopener\">Strat\u00e9gie de recherche ax\u00e9e sur le patient<\/a> (IRSC)<\/li><li>Instituts de recherche en sant\u00e9 du Canada &#8211; Institut de g\u00e9n\u00e9tique : <a href=\"https:\/\/cihr-irsc.gc.ca\/f\/53242.html\" target=\"_blank\" rel=\"noopener\">Partenariat avec les patients<\/a><\/li><li><div class=\"container uc-logo-container\"><div class=\"row\"><div class=\"col-12\"><div class=\"uc-logo\"><p><a href=\"https:\/\/www.ucalgary.ca\/patient-community-engagement-research\" target=\"_blank\" rel=\"noopener\">Patient and Community Engagement Research<\/a> (PaCER) &#8211; Universit\u00e9 de Calgary : pour former les patients et les membres de la communaut\u00e9 \u00e0 int\u00e9grer les r\u00e9sultats de la recherche sur la sant\u00e9 &#8211; inform\u00e9s par eux &#8211; dans la planification et la pratique des soins de sant\u00e9, ainsi que dans les politiques en sant\u00e9.<\/p><\/div><\/div><\/div><\/div><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-01df13f elementor-widget elementor-widget-heading\" data-id=\"01df13f\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Vous souhaitez en savoir plus sur la recherche dans le domaine des maladies rares ?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1066b18 elementor-widget elementor-widget-text-editor\" data-id=\"1066b18\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"http:\/\/www.irdirc.org\/\">Consortium international de recherche sur les maladies rares (IRDiRC)<\/a><\/li><li><a href=\"https:\/\/www.eurordis.org\/our-priorities\/research\/\" target=\"_blank\" rel=\"noopener\">La recherche sur les maladies rares &#8211; Eurordis<\/a><\/li><li>EURORDIS propose une formation en personne pour les d\u00e9fenseurs des patients chaque ann\u00e9e au mois de juin. Il propose \u00e9galement une formation en ligne gratuite. Voir ici : <a href=\"https:\/\/openacademy.eurordis.org\/summer-school\/\">Open Academy School on Medicines Research and Development<\/a>.<\/li><li>Consultez \u00e9galement ces cours propos\u00e9s en plusieurs langues, dont le fran\u00e7ais <a href=\"https:\/\/openacademy.eurordis.org\/all-courses\/\">: https:\/\/openacademy.eurordis.org\/all-courses\/<\/a><\/li><li><a href=\"https:\/\/learn.rarediseases.org\/\">Programme RareEdu<\/a> de la National Organization for Rare Disorders (\u00c9tats-Unis)<\/li><\/ul><p><strong>Pour plus d&rsquo;informations sur d&rsquo;autres initiatives au Canada, consultez notre page \u00ab\u00a0<a href=\"https:\/\/irarecentres.org\/fr\/les-maladies-rares-au-canada\/\">Maladies rares au Canada<\/a>\u00ab\u00a0. <\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4b5ba70 elementor-widget elementor-widget-spacer\" data-id=\"4b5ba70\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Recherche sur les maladies rares Ce que nous faisons pour la recherche La recherche sur les maladies rares est essentielle pour am\u00e9liorer la qualit\u00e9 de vie des personnes touch\u00e9es et de leurs familles. Les chercheurs et gouvernements canadiens, ainsi que les compagnies pharmaceutiques, s&rsquo;int\u00e9ressent de plus en plus \u00e0 l&rsquo;avancement des connaissances sur les maladies [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_uag_custom_page_level_css":"","site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-4617","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Recherche - iRare Centres<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/irarecentres.org\/fr\/recherche\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Recherche - iRare Centres\" \/>\n<meta property=\"og:description\" content=\"Recherche sur les maladies rares Ce que nous faisons pour la recherche La recherche sur les maladies rares est essentielle pour am\u00e9liorer la qualit\u00e9 de vie des personnes touch\u00e9es et de leurs familles. 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