{"id":4607,"date":"2024-08-05T23:09:19","date_gmt":"2024-08-05T23:09:19","guid":{"rendered":"https:\/\/irarecentres.org\/comment-nous-aidons\/"},"modified":"2025-02-20T02:02:42","modified_gmt":"2025-02-20T02:02:42","slug":"comment-nous-aidons","status":"publish","type":"page","link":"https:\/\/irarecentres.org\/fr\/comment-nous-aidons\/","title":{"rendered":"Comment nous aidons"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"4607\" class=\"elementor elementor-4607 elementor-2842\">\n\t\t\t\t<div class=\"elementor-element elementor-element-05a32af e-flex e-con-boxed e-con e-parent\" data-id=\"05a32af\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0e1cd2d elementor-widget elementor-widget-spacer\" data-id=\"0e1cd2d\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-63cd5e5 elementor-widget elementor-widget-heading\" data-id=\"63cd5e5\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Comment nous aidons<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bd614b4 elementor-widget elementor-widget-spacer\" data-id=\"bd614b4\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3b72307 e-flex e-con-boxed e-con e-parent\" data-id=\"3b72307\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-4cb6047 e-con-full e-flex e-con e-child\" data-id=\"4cb6047\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1255f45 elementor-widget elementor-widget-image\" data-id=\"1255f45\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"768\" height=\"463\" src=\"https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/08\/For-any-rare-or-undiagnosed-disease-3-2-768x463.png\" class=\"attachment-medium_large size-medium_large wp-image-2977\" alt=\"\" srcset=\"https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/08\/For-any-rare-or-undiagnosed-disease-3-2-768x463.png 768w, https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/08\/For-any-rare-or-undiagnosed-disease-3-2-300x181.png 300w, https:\/\/irarecentres.org\/wp-content\/uploads\/2024\/08\/For-any-rare-or-undiagnosed-disease-3-2.png 781w\" sizes=\"(max-width: 768px) 100vw, 768px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f033810 e-con-full e-flex e-con e-child\" data-id=\"f033810\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7104ec2 elementor-widget elementor-widget-text-editor\" data-id=\"7104ec2\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"text-align: center;\"><strong>Pour Canadiens hors Qu\u00e9bec<\/strong><\/p><p style=\"text-align: center;\">9h \u00e0 17h (heure normale des Rocheuses &#8211; Edmonton)<\/p><p style=\"text-align: center;\">1-888-822-2854 (partout au Canada)<\/p><p style=\"text-align: center;\"><a href=\"mailto:info@irarecentres.org\">info@irarecentres.org<\/a><\/p><p style=\"text-align: center;\">&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;<\/p><p style=\"text-align: center;\"><strong>Centre iRARE pour le Qu\u00e9bec <br \/><\/strong><\/p><p style=\"text-align: center;\">1-888-822-2854<\/p><p style=\"text-align: center;\"><a href=\"mailto:info@rqmo.org\">info@rqmo.org<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-275d818 e-flex e-con-boxed e-con e-parent\" data-id=\"275d818\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-db45063 elementor-widget elementor-widget-text-editor\" data-id=\"db45063\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Le partage des connaissances est l&rsquo;essence m\u00eame des centres iRARE. Nous nous sommes fix\u00e9 pour objectif d&rsquo;\u00eatre \u00e0 la fine pointe des d\u00e9veloppements dans le domaine des maladies rares et de rendre ces informations accessibles et compr\u00e9hensibles. Nous offrons une vari\u00e9t\u00e9 de services adapt\u00e9s \u00e0 vos besoins, que vous soyez une personne atteinte d&rsquo;une maladie rare, un proche aidant, une association, un professionnel de la sant\u00e9 ou toute autre personne ayant une question concernant une maladie rare.<\/p><p>Les informations sont transmises gratuitement par des professionnelles bilingues form\u00e9es \u00e0 cet effet.<\/p><p><strong><em>Veuillez noter :<\/em><\/strong><\/p><ul><li><strong><em>Nous ne fournissons pas de conseils m\u00e9dicaux et nous vous sugg\u00e9rons de discuter des informations re\u00e7ues avec votre \u00e9quipe de soins.<\/em><\/strong><\/li><li><em><strong>Nous respectons votre vie priv\u00e9e. Nous ne transmettons aucune information vous concernant \u00e0 un tiers sans votre consentement. <\/strong><br \/><\/em><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-83c9c57 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"83c9c57\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3f41ea1 elementor-widget elementor-widget-heading\" data-id=\"3f41ea1\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">DES INFORMATIONS SUR UNE MALADIE RARE<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d843853 elementor-widget elementor-widget-text-editor\" data-id=\"d843853\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h5>Est-ce que vous, votre enfant ou un proche venez d&rsquo;obtenir un diagnostic de maladie rare ? Vous voulez tout savoir sur cette maladie ? Nous pouvons vous fournir une <strong>fiche de ressources<\/strong> qui contiendra :<\/h5><ul><li>Une br\u00e8ve description de la maladie<\/li><li>Articles de synth\u00e8se et guides pour la prise en charge m\u00e9dicale<\/li><li>Une liste d&rsquo;experts ou de cliniques sp\u00e9cialis\u00e9es dans la maladie<\/li><li>Associations de patients<\/li><li>Les chercheurs experts et leurs projets de recherche (voir <a href=\"https:\/\/irarecentres.org\/fr\/recherche\/\">Recherche)<\/a><\/li><li>Essais cliniques en cours<\/li><li>M\u00e9dicaments orphelins en d\u00e9veloppement et sur le march\u00e9 (voir <a href=\"https:\/\/irarecentres.org\/fr\/traitements\/\">Traitements<\/a>)<\/li><\/ul><p>Si vous avez une question sp\u00e9cifique sur la maladie, nous pouvons chercher la r\u00e9ponse pour vous.<\/p><p>Les informations transmises proviennent de sources fiables, officielles et \u00e0 jour.\u00a0 <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f51c810 elementor-widget elementor-widget-spacer\" data-id=\"f51c810\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8e9a107 elementor-widget elementor-widget-heading\" data-id=\"8e9a107\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">VOUS N'AVEZ PAS DE DIAGNOSTIC ?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-46583bc elementor-widget elementor-widget-button\" data-id=\"46583bc\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/irarecentres.org\/fr\/pas-de-diagnostic\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">CLIQUEZ ICI POUR PLUS D'INFORMATION ET DES RESSOURCES<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3cf866b elementor-widget elementor-widget-spacer\" data-id=\"3cf866b\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b97b059 elementor-widget elementor-widget-heading\" data-id=\"b97b059\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">DES INFORMATIONS SUR LA G\u00c9N\u00c9TIQUE ET L'H\u00c9R\u00c9DIT\u00c9<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d56e8eb elementor-widget elementor-widget-text-editor\" data-id=\"d56e8eb\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Quatre-vingt pour cent (80%) des maladies rares sont d&rsquo;origine g\u00e9n\u00e9tique. Pour obtenir des informations sur la g\u00e9n\u00e9tique et l&rsquo;h\u00e9r\u00e9dit\u00e9 de votre maladie, contactez-nous. Une conseill\u00e8re en g\u00e9n\u00e9tique peut vous donner un conseil g\u00e9n\u00e9tique de base sur votre maladie ou r\u00e9pondre \u00e0 vos questions sur les tests g\u00e9n\u00e9tiques, les risques \u00e9ventuels pour les autres membres de votre famille, vos options pour la planification familiale, etc.<\/p><p>Si n\u00e9cessaire, nous pouvons vous trouver un service de g\u00e9n\u00e9tique ou une clinique\/laboratoire pour effectuer un test g\u00e9n\u00e9tique.<\/p><p>Vous n&rsquo;\u00eates pas s\u00fbr d&rsquo;avoir compris le r\u00e9sultat d&rsquo;un test g\u00e9n\u00e9tique ou il y a longtemps que vous avez re\u00e7u l&rsquo;information? Contactez-nous et nous reverrons cette information avec vous.<\/p><p><em><strong>Attention : Si vous pensez \u00eatre atteint d&rsquo;une maladie g\u00e9n\u00e9tique et souhaitez effectuer un test g\u00e9n\u00e9tique, soyez prudent avec les tests g\u00e9n\u00e9tiques propos\u00e9s sur l&rsquo;internet (offres directes au consommateur qui ne n\u00e9cessitent pas de prescription d&rsquo;un m\u00e9decin). La plupart de ces tests ne sont pas effectu\u00e9s dans des laboratoires certifi\u00e9s et ne peuvent pas \u00eatre utilis\u00e9s pour poser des diagnostics m\u00e9dicaux officiels. Les r\u00e9sultats de ce type de tests ne seront pas pris en compte dans le syst\u00e8me de sant\u00e9 publique ou devront \u00eatre confirm\u00e9s par un laboratoire certifi\u00e9. <\/strong><\/em><\/p><p>Il est toutefois possible d&rsquo;acc\u00e9der \u00e0 des tests g\u00e9n\u00e9tiques aupr\u00e8s de laboratoires agr\u00e9\u00e9s ou de cliniques priv\u00e9es en payant vous-m\u00eame. Si vous ne pouvez pas acc\u00e9der \u00e0 un service de g\u00e9n\u00e9tique publique et que vous \u00eates pr\u00eat \u00e0 payer pour un test g\u00e9n\u00e9tique, <strong>contactez-nous<\/strong> pour obtenir des conseils. Nous vous orienterons vers les services appropri\u00e9s.<\/p><p>Vous pouvez \u00e9galement avoir acc\u00e8s \u00e0 des tests g\u00e9n\u00e9tiques si :<\/p><ul><li>Un membre de votre famille a \u00e9t\u00e9 diagnostiqu\u00e9 avec une maladie g\u00e9n\u00e9tique et <strong>vous souhaitez savoir si vous \u00eates porteur <\/strong>de cette maladie.<\/li><li>Vous envisagez d&rsquo;avoir des enfants et <strong>vous souhaitez savoir si vous et votre partenaire \u00eates porteurs<\/strong> d&rsquo;une maladie g\u00e9n\u00e9tique (m\u00eame s&rsquo;il n&rsquo;y a pas de maladie sp\u00e9cifique connue dans votre famille).<\/li><\/ul><p><strong>Contactez-nous<\/strong> pour obtenir de de l&rsquo;information sur ces tests de d\u00e9pistage de porteurs.<\/p><p><strong>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;<\/strong><\/p><p><strong>LE SYNDROME D&rsquo;EHLERS-DANLOS OU LES TROUBLES DE L&rsquo;HYPERMOBILIT\u00c9<br \/><\/strong><\/p><p>De nombreuses personnes nous contactent parce qu&rsquo;elles soup\u00e7onnent \u00eatre atteintes du syndrome d&rsquo;Ehlers-Danlos. Si vous r\u00e9sidez hors du Qu\u00e9bec, contactez le <a href=\"https:\/\/www.theilcfoundation.org\/\" target=\"_blank\" rel=\"noopener\">EDS Canada Foundation.<\/a> Pour les r\u00e9sidents du Qu\u00e9bec, consultez <a href=\"https:\/\/rqmo.org\/en\/ehlers-danlos-syndromes-and-hypermobility\/\" target=\"_blank\" rel=\"noopener\">la page web du RQMO sur le syndrome d&rsquo;Ehlers-Danlos.<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-97422b7 elementor-widget elementor-widget-spacer\" data-id=\"97422b7\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-36cccd3 elementor-widget elementor-widget-heading\" data-id=\"36cccd3\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">BESOIN D'AIDE, DE SOUTIEN, DE RESSOURCES ?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-57d2574 elementor-widget elementor-widget-text-editor\" data-id=\"57d2574\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Nous trouverons pour vous :<\/p><ul><li>Services dans le syst\u00e8me de sant\u00e9<\/li><li>Informations sur les programmes et services gouvernementaux<\/li><li>Ressources communautaires pr\u00e8s de chez vous (aide aux personnes handicap\u00e9es, groupes de soutien, r\u00e9pit, gardiennage, aide financi\u00e8re, etc.)<\/li><\/ul><h4><strong>Notre service de jumelage<\/strong><\/h4><p>Souhaitez-vous \u00eatre mis en contact avec une personne ou une famille de votre province qui est confront\u00e9e \u00e0 la m\u00eame maladie rare que vous ou votre enfant ? <a href=\"https:\/\/irarecentres.org\/fr\/service-de-jumelage\/\"><strong>Abonnez-vous<\/strong> <strong>\u00e0 notre<\/strong> <strong>service de jumelage<\/strong><\/a>.<\/p><h4><strong>Notre r\u00e9pertoire de ressources<\/strong><\/h4><p>Trouvez divers services, ressources et programmes qui pourraient vous aider dans plusieurs aspects de votre vie. <strong><span style=\"color: #ff0000;\">Ressources pan-canadiennes ou provinciales\/territoriales.<\/span><\/strong><\/p><h4><strong>Notre r\u00e9pertoire d&rsquo;associations de patients et de groupes de soutien<\/strong><\/h4><p>Trouvez une communaut\u00e9 qui conna\u00eet bien votre maladie rare et avec laquelle vous pouvez entrer en contact. Consultez notre <strong><a href=\"https:\/\/irarecentres.org\/fr\/repertoire-des-associations-de-patients\/\" target=\"_blank\" rel=\"noopener\">R\u00e9pertoire d&rsquo;associations de maladies rares<\/a><\/strong> et d&rsquo;autres organismes utiles au Canada.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a22e68b elementor-widget elementor-widget-spacer\" data-id=\"a22e68b\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c9ec0ef elementor-widget elementor-widget-heading\" data-id=\"c9ec0ef\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Souhaitez-vous chercher de l'information vous-m\u00eame ?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f242754 elementor-widget elementor-widget-text-editor\" data-id=\"f242754\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Consultez notre page contenant <a href=\"https:\/\/irarecentres.org\/fr\/sources-dinformation-sur-les-maladies-rares\/\" target=\"_blank\" rel=\"noopener\"><strong>les principales sources officielles d&rsquo;information sur les maladies rares<\/strong><\/a> et d&rsquo;autres informations utiles.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-685d21b elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"685d21b\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a3faecf elementor-widget elementor-widget-heading\" data-id=\"a3faecf\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">L'information et le soutien sont les cl\u00e9s d'une meilleure prise en charge de votre maladie rare. Contactez nous !<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-09f3cf2 elementor-widget elementor-widget-spacer\" data-id=\"09f3cf2\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Comment nous aidons Pour Canadiens hors Qu\u00e9bec 9h \u00e0 17h (heure normale des Rocheuses &#8211; Edmonton) 1-888-822-2854 (partout au Canada) info@irarecentres.org &#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230; Centre iRARE pour le Qu\u00e9bec 1-888-822-2854 info@rqmo.org Le partage des connaissances est l&rsquo;essence m\u00eame des centres iRARE. Nous nous sommes fix\u00e9 pour objectif d&rsquo;\u00eatre \u00e0 la fine pointe des d\u00e9veloppements dans le domaine [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_uag_custom_page_level_css":"","site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-4607","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Comment nous aidons - iRare Centres<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/irarecentres.org\/fr\/comment-nous-aidons\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Comment nous aidons - iRare Centres\" \/>\n<meta property=\"og:description\" content=\"Comment nous aidons Pour Canadiens hors Qu\u00e9bec 9h \u00e0 17h (heure normale des Rocheuses &#8211; Edmonton) 1-888-822-2854 (partout au Canada) info@irarecentres.org &#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230;&#8230; Centre iRARE pour le Qu\u00e9bec 1-888-822-2854 info@rqmo.org Le partage des connaissances est l&rsquo;essence m\u00eame des centres iRARE. 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Nous nous sommes fix\u00e9 pour objectif d&rsquo;\u00eatre \u00e0 la fine pointe des d\u00e9veloppements dans le domaine\u2026","_links":{"self":[{"href":"https:\/\/irarecentres.org\/fr\/wp-json\/wp\/v2\/pages\/4607","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/irarecentres.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/irarecentres.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/irarecentres.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/irarecentres.org\/fr\/wp-json\/wp\/v2\/comments?post=4607"}],"version-history":[{"count":64,"href":"https:\/\/irarecentres.org\/fr\/wp-json\/wp\/v2\/pages\/4607\/revisions"}],"predecessor-version":[{"id":6449,"href":"https:\/\/irarecentres.org\/fr\/wp-json\/wp\/v2\/pages\/4607\/revisions\/6449"}],"wp:attachment":[{"href":"https:\/\/irarecentres.org\/fr\/wp-json\/wp\/v2\/media?parent=4607"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}